explain the importance of both practical support and emotional support during a time of change.
Different groups of service users may need different kinds of practical support to enable them to get involved and stay involved. Individual service users will also have varying needs. [ Getting the support right is an important first step for involvement and will ensure that the involvement is productive. People will feel valued and heard if their needs are met from the outset.
users and carers may also need emotional support as being involved may bring back memories of painful experiences. Supporting people through their distress is an essential requirement. Some service users may also feel frustration and anger and it is important to find ways to channel this anger to bring positive benefits to the research.
Involving some service user groups can be perceived to be ‘too difficult’ or ‘inappropriate’, but this is often more to do with a lack of knowledge or confidence in meeting those people’s needs. The experience of, for example involving people who are terminally-ill, suggests that with the appropriate practical and emotional support, involvement can be a rewarding experience and bring huge benefits to an organisation and to research.
There are no new answers.